Sunday, March 4, 2012
I hate the NICU
Horrible, horrible day for Atticus. His feeds aren't progressing, bowel is hypoactive, so will need TPN for *at least seven more days*. Fuck. So for the second time they tried to give him a PICC line, and once again failed miserably. And he got so upset (those fuckers didn't sedate him enough, I'm guessing) that he extubated himself. So they tried him off the vent and he needed to go back on after 40 minutes. I'm so upset. We've gone completely backwards since surgery. I feel like I'm never getting him home--they're now talking about drastic measures (IMO, especially since he was on room air--not even a cannula!--at the other hospital) like jaw surgery to open his airway some. I just want him safe and home
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12 comments:
So sorry to hear that Atticus had a setback. I know it must be so scary and frustrating to see him have to go through all this. I will be praying that he makes some good progress this week and gets to go home soon!
Aww Im so sorry to hear this :( I know you want your boy just home and safe and sound. Soon!!! I just know it! Praying for you all xo
The NICU is like that. One step forward, two steps back, two steps forward, one step back. I hope that he takes a couple of HUGE steps forward this week. This is such a difficult time for you. I wish I could give you a huge hug right now.
Sending huge hugs as you navigate this path. Praying that this week is better for little Atticus.
Oh Marissa- I'm so sorry to hear this, it just breaks my heart! One of my little guys had surgery last week and it about broke me! I can semi-relate to what you are going through, but not completely. It is heart-breaking to see our little ones struggling. Hang in there Mama...there is light at the end of the tunnel!
I am so sorry to hear this. That just sucks for YOU and for him. Poor little guy. Hope things improve quickly.
Oh, PICC line attempt failing, oww. I am cringing just thinking about it. Poor wee guy - so much to cope with, but he's seeming like such a little warrior that I am sure he will get past this eventually.
And airway issues are so stupid in their random variation, and how much it depends on who the caregiver is whether it's "fine" or "definitely needing some dire measures". RJ fired from the NICU completely off oxygen but then spent two weeks in the other hospital needing O2 intermittently before he was finally sent home. I know that's a very short stay and absolutely nothing to complain about, but having the "just a few more days" periodically dangled in front of us drove us crazy. It would be a good day, a bad day, another good day enough to get our hopes up, and then NO, desats all over the place. We finally got home just as we'd resigned ourselves to staying indefinitely.
Anyway, I have just a tiny inkling of how awful this is for you and I hope very much that you can be strong and deal with this thing that no parent should have to deal with. Chickenpig is so right - that's how the NICU rollercoaster is, no linear progress.
Atticus is in my thoughts and so are you. I hope the old adage "the darkest hour is right before dawn" holds true and that Atticus just needs a bit more time to recuperate from the surgery before he wows you all with his progress and eventual homecoming so he can be reunited with his "little" brother.
:( are you going to get a second opinion...or move him back to where u felt more comfortable with the staff?
Oh, poor dear (you and Atticus!). Sending him and you both good thoughts.
Marissa, I'm so sorry to hear this. I cannot imagine how hard this must be for you, how powerless one must feel in this situation. And so I am sending you every good thought, for you and especially for Atticus.
Oh Marissa, I'm sorry this is happening. Keeping you and your babe in my thoughts.
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